Our Directors and Officers

Ron Bartek
Friedreich’s Ataxia Research Alliance (FARA)
Chair

Victoria Gemme
National Organization for Rare Disorders (NORD)
Secretary

Paul Melmeyer
Muscular Dystrophy Association (MDA)
Treasurer

Kristin Schneeman
FasterCures, a Center of Milken Institute
Director

Dave Gordon
Palantir
Director

Reid Simon
Axel Informatics
Director

Annie Kennedy
EveryLife Foundation for Rare Diseases
Director

Jonathan McPherson
PTC Therapeutics
Director

Diana Pankevich
Pfizer
Director

Jasmin Phua
Datavant
Director

Tim Hunt
Alliance for Regenerative Medicine
Director

J. Kevin Brennan
Principal, Bluebird Strategies
NCATS Alliance, Executive Director