Our Directors and Officers
Ron Bartek
Friedreich’s Ataxia Research Alliance (FARA)
Chair
Victoria Gemme
National Organization for Rare Disorders (NORD)
Secretary
Paul Melmeyer
Muscular Dystrophy Association (MDA)
Treasurer
Kristin Schneeman
FasterCures, a Center of Milken Institute
Director
Dave Gordon
Palantir
Director
Reid Simon
Axel Informatics
Director
Annie Kennedy
EveryLife Foundation for Rare Diseases
Director
Jonathan McPherson
PTC Therapeutics
Director
Diana Pankevich
Pfizer
Director
Jasmin Phua
Datavant
Director
Tim Hunt
Alliance for Regenerative Medicine
Director
J. Kevin Brennan
Principal, Bluebird Strategies
NCATS Alliance, Executive Director