Our Directors and Officers

Ron Bartek
Friedreich’s Ataxia Research Alliance (FARA)
Chair

Safiyya Gassman
Pfizer

Shaun J. Grannis, MD, MS
Regenstrief Institute

Tim Hunt
Alliance for Regenerative Medicine

Jonathan McPherson
PTC Therapeutics

Jasmin Phua
Datavant

Reid Simon
Axel Informatics

Philomena Fritz
Palantir

Pamela Gavin
National Organization for Rare Disorders (NORD)

Rachel Hess, MD, MS
Consortium of Rural States (CORES)

Annie Kennedy
EveryLife Foundation for Rare Diseases

Paul Melmeyer
Muscular Dystrophy Association (MDA)

Kristin Schneeman
FasterCures, a Center of Milken Institute

J. Kevin Brennan
Principal, Bluebird Strategies
NCATS Alliance, Executive Director